Informed Choice Committee Update
Goal # 1: Develop a document outlining available community services
OLD INFO
Status: Document is at the print shop - December 2002 Document is in draft format. Once state agencies look at it to determine if information is accurate, the document will come back to the full PIC for approval. At this time (12/10/02) the brochure is missing information on Bureau of Special Health Care Needs.
When: By February 2003 meeting
Who: Informed Choice Workgroup (Sherl Taylor is contact)
NEW INFO
Contact is Sheryl Taylor 1-9290 (353-2142 cell) and Ed Kneist.
- Drafts were passed out a month ago. Need to get copy of this for JM for Monday. Done and enclosed. Estimate is $7,817.44 for 10,000 copies.
- Was the missing information found? Yes
- Is the brochure printed in mass? Brochure is on its way from printers.
- Encourage a dissemination plan? Initial thoughts are Hospitals, Agencies, NH's, AAA and perhaps In-home. There is not timeline in place. JM should push for a timeline.
Goal #2: Division of Senior Services will develop a database that collects information on why people are entering nursing homes in order to address and eliminate barriers to remaining in the community. (DSS has already been working on this goal).
OLD INFO
Action Step: Data-base selected
Who: DSS
When: December 2002
Status: On-going
Action Step: Forms for collecting data agreed to.
Who: DSS and Informed Choice Workgroup
When: December 31, 2002
Status: On-going
Action Step: Piloting the data collection for two subsets: 1) people "standing at the door" of the facility and 2) people in the hospital who will soon be facing a choice about long term care.
Who: DSS
When: starting in January 2003
Status: Software has been purchased and goal is start collecting data by the start of the General Assembly
NEW INFO
Contact is Linda Allen
- Has software been purchased for database? The software was purchased on February 20th. The final changes to the program are being made currently.
- How many entities are on the database? Dept. still working out the details of capturing data.
- How will the information be used? This information will be used to identify the gaps in service delivery to allow community placement and to guide policy and lawmaking to make appropriate services and funding streams available to divert facility placement. Bottomline - data will support concept where Medicaid dollars follow the person outside of the nursing home.
- What is the ultimate goal in use for this information? Unknown
- Is there a dissemination plan once information is gathered? NO
Goal #3: Training and educating hospital discharge planners and anyone else who talks to people about long term care options
OLD INFO
Action Step: Meet and work with Hospital Association
Who: Linda Allen
Status: On-going. Linda Allen did meet with Missouri Hospital Representatives. Goal is to train social workers and physicians on options for patients.
Action Step: Allow for a seven day transition planning process before hospital discharge so that there is a chance to do a full assessment and find community resources. The following is a list of noted community resources (not exhaustive): social workers, family minister, doctors, hospital association and hospitals, community hot lines, public administrators, county health nurses, home health agencies, independent living centers, education system or DESE, parents and guardians.
Who: Lt. Governor Maxwell and Greg Vadner and workgroup
When: Discussion before December meeting
Status: On-going (no change)
Action Step: Develop a list that identifies everybody in the community who would have contact with people who are making decisions about long term care and supports.
Who: Workgroup members
When: by January 2003 meeting
Status: The community list was developed in November workgroup (not available. Need to get from the Governor's Council). Once list is on this website, then state agencies and other interested parties can start working with the community members who have contact with people who are making decisions about long-term care and supports.
Action Step: Make assignments to work group members to talk to everybody identified (discharge planners, social workers, rehab counselors, public administrators, etc.) and distribute the community resource booklet.
Who: Work Group members
When: assignments made in January
Status: This is the dissemination strategy to get this information out. On-going.
NEW INFO
Contact is Linda Allen. Ongoing.
- JM should request the type of feedback from this training, "What are people saying?"
- Encourage list to be given to Ombudsman program and other groups
- Is the list on the website? No
- What's the update? According to Linda Allen, the biggest obstacle in reaching this goal is the inability for the Div of Medical Service to deliver the Medicaid Brochure, which as it states above is on its way. Linda further states that implementation is also hindered because the data process in goal #2 is not completed.
Goal #4: Pilot the Informed Choice Training Program
OLD INFO
Action Step: Hold a meeting to further discuss with representatives of nursing homes, habilitation centers, in-home health care providers, and centers for independent living the mechanics of how to effectively educate consumers about the range of personal attendant care options.
Who: Governor's Council on Disability, Department of Health and Senior Services/ Division of Senior Services, and Department of Mental Health
When: By January 13, 2003 PIC meeting
Status: This first meeting took place on Dec. 5 as planned. Representatives from the Governor's Council on Disability, Vocational Rehabilitation, Nursing Home (Missouri Health Care Alliance), Division of Health and Senior Services, Centers for Independent Living (Paraquad), Long-Term Care Ombudsman Program, and Department of Mental Health were in attendance. As a follow-up to this meeting, Linda Allen of Division of Health and Senior Services will meet with several nursing home representatives and Department of Mental Health representatives will meet with Habilitation Center Supervisors, Regional Center Supervisors, and parents/guardians. The purpose of the follow-up meeting is to come up with a consensus on the possible protocol for implementation of pilot program. On-going.
NEW INFO:
Contact is Linda Allen.
- Held a pilot session for Informed Choice training February 27th, 2003 from 10am to 3:00pm. Dr. Linda Allen, the director of Senior Services, hosted the pilot session.
- The purpose of the training was to give people materials, manpower and mechanisms, through which they could share information with the community. The pilot session hoped to educate a few representatives of the community on various living options with the idea that these representatives would act as liaisons between the commission and the community.
- The training session was divided into five sections: Introduction, Role of the Informed Choice Provider, Communication Skills, Exploring Options, and Responsibility/ Accountability. Video clips, a discussion of the viewers' reactions followed, a brief history of the Olmstead decision was given as well as the definition of an informed choice provider.
- Dr. James Powell, with the Division of Senior Services, discussed the philosophy of informed choice. Main points of the lecture: People should not have to go into an institution to get long term care. Some people may want to be in an institution. Some communities may not have other options for disabled residents- the commission needs to track the gaps. A professional should be present to settle disputes if a person wants to leave a nursing home and he/she has a legal guardian that disagrees.
- Paraquad explained the various stages of readiness that occur before change. Representatives emphasized the point that people are afraid of change. Many examples of people backing out of moving due to fear were given. They also discussed the idea that nursing home staff and providers may not be receptive to people coming in to inform the residents of their options. The nursing home staff could see this as a job threat. The representatives discussed a similar program that was implemented in Oregon. They said that the nursing homes became less defensive as they learned more about the goals of the project.
|
